Happy New Year! This has been of year of exciting times for me. I haven't needed to use my feeding tube since February. 2011 is going to be fabulous...I just know it. I'll be turning 10 years old and Mommy and Daddy will celebrate their 20 year wedding anniversary. We are going to enjoy the new Saturday Social events that benefit For Maddie's Sake, Inc. 2010 was just a glimpse of exciting times to come in 2011.
"My name is Maddie and I'm a small teenager who enjoys life and has fun wherever I am!"
"There's more to me than just my special needs and my diagnoses. People are very curious about me and I don't mind sharing.
I was born with a rare disorder Feingold Syndrome which consists of my most noticeable characteristic,
Microcephaly (small head). Mommy says mine is cute and petite...just like me!
"God gave it to me, so I thought I'd wear it."