Flash Mob at Cedar Hill - Click Picture For Video
Dancing In YELLOW For A Cause - Microcephaly
Let's hear it for Mrs. Truett and the Midlothian Pantherettes & PALS for choreographing and performing a flash mob dance to show their support for people with Microcephaly, like Maddie. Flash Mob was performed at Uptown Village in Cedar Hill, Texas.
Microcephaly Awareness Day is Sept. 30th
Thank you for all of your support. We are so thankful to have people like you in our lives to help us spread the word. 25,000 children are diagnosed each year with this neurological disorder that can be developmentally challenging. It's more common than Autism and is underdiagnosed. There is no cure, however, research is being done...check out www.ChildrenWithMicro.org to learn more.
WHERE I'VE MET PEOPLE LIKE ME...with MICROCEPHALY!
In 2010, my family and I attended the Foundation for Children Microcephaly (FCM) Convention where there were a lot of people there who looked like me! At the convention I met a special little boy named Brady from Nebraska that I felt like I had known my whole life. We immediately held hands and began running down the hall together laughing and talking. No one else understood a word we were saying...but we sure did!
I really hope we can attend the 2012 FCM Convention in June, in Arizona. We are asking for donations and are fundraising to help pay for our family to attend the convention. Our goal is $2,500 so we can make this trip. It would be wonderful if we could raise double that amount and be able to send another family from this area with us.
TWO WAYS TO HELP SEND MADDIE & FAMILY TO THE "2012 FCM MICROCEPHALY CONVENTION"
1 - Place online order from Thirty-One Gifts to have 25% go towards For Maddie's Sake, Inc. Order by September 28th by clicking here: THIRTY-ONE GIFTS
2 - You may simply make a cash donation in increments of $15 by clicking here: CASH DONATION
"My name is Maddie and I'm a small teenager who enjoys life and has fun wherever I am!"
"There's more to me than just my special needs and my diagnoses. People are very curious about me and I don't mind sharing.
I was born with a rare disorder Feingold Syndrome which consists of my most noticeable characteristic,
Microcephaly (small head). Mommy says mine is cute and petite...just like me!
"God gave it to me, so I thought I'd wear it."