A student led project called Links of Love was inspired to create awareness for one of Maddie's diagnosis', Microcephaly, a neurological disorder where the head size is small than average and developmentally delayed. This was held in honor of Microcephaly Awareness Day, September 30th. The student sold t-shirts and handed out For Maddie's Sake flyers to individuals to promote awareness of acceptance of differences in people. At the end of a one week fundraiser, they pulled together $1,080 to donate to a non-profit organization that is dear to our hearts, the Foundation for Children with Microcephaly. A big thank you goes out to Callie Roberson and Debbie Fussell for helping to get the word out.
"My name is Maddie and I'm a small teenager who enjoys life and has fun wherever I am!"
"There's more to me than just my special needs and my diagnoses. People are very curious about me and I don't mind sharing.
I was born with a rare disorder Feingold Syndrome which consists of my most noticeable characteristic,
Microcephaly (small head). Mommy says mine is cute and petite...just like me!
"God gave it to me, so I thought I'd wear it."